Jonathan Bryan is a remarkable 12-year old young man. When his mother, Chantal, was 37 weeks pregnant, she and her husband Christopher were involved in a car crash. Jonathan was born with cerebral palsy. Chantal and Christopher were told that it was highly unlikely that he would ever walk, talk, feed himself, or even recognise his parents. Life was soon a nonstop round of hospital visits and operations.
As his peers started to say their first words, Jonathan could only frown or grin. He was ‘locked in’ and totally unable to communicate beyond a simple ‘yes’ or a ‘no’. He attended a local special school and his mother often read stories to him. He loves The Chronicles of Narnia. One day a health worker asked Chantal whether she had tried to teach Jonathan his letters and numbers. With the help of various professionals and a huge amount of patience from Chantal, it was established that Jonathan’s eyes would be the key to him communicating. They tried various types of ‘eye gaze’ equipment and eventually settled on a Perspex spelling board. Jonathan turned out to be a highly motivated student. He learnt to recognise different letters and numbers and, using a system of colour-coded letters, he began to be able to spell out whole words.
Jonathan has taken part in television programmes and recently published a book entitled “Eye Can Write: a memoir of a child’s silent emerging.” The book was painstakingly written letter by letter. He has helped to launch a charity – Teach Us Too – which campaigns for all non-verbal children to be taught to read and write. He also writes a blog www.eyecantalk.net.
In his book Jonathan writes of his faith in Jesus Christ. When he was nine, Jonathan was in an induced coma and he describes that near-death experience in this way: “…as the time drew on I was aware that I had a choice to make. Either I could stay to meet the gardener, my saviour; or I could go back to my fragile sick body; back to my mind trapped in silence; back to the family I loved. ‘Jonathan!’ My mother’s voice called me from beyond the garden, and my decision was made. That was the hardest decision of my life, but it has also shaped my perspective ever since. While my soul longs to live in the garden, my heart is torn between my family and freedom, but with Jesus’ presence helping me here, I know I can endure my limiting body for longer. My experience in the garden has given me a zest for life.’
At a time when the news is dominated by bad news stories the International Paralympics Committee Athletics European Championships in Swansea have been a wonderful example of people achieving great things. The story of Maria Lyle, from Dunbar in Scotland, is so encouraging. Maria has Cerebral Palsy which causes muscle weakness and stiffness, and balance and coordination problems. Maria, who is just 14 years old, won the T35 100 metres gold medal, a category for those with Cerebral Palsy. She also broke the world record. Two days later she won the T35 200 metres gold medal.
When she was a child Maria needed splints to help her to walk. She found sport hard because of her tight muscles caused by Cerebral Palsy. When she was 10 years old she went to the local running club and found she could keep up with and beat many of her friends. She began competing in able-bodied competitions and later in disability athletics. Just 4 years later she has won two European gold medals! She enjoys setting goals and challenges for herself to see if she can achieve them. She said, “It’s a good feeling to know you have a purpose and feel rewarded for the hard work and effort you put in.” Her sporting hero is Usain Bolt, not only because of his speed, but because he so obviously enjoys what he does.
In Psalm 139 David reflects on the fact that God knows him personally and intimately. It was God who had made him the person he was. “For you created my inmost being; you knit me together in my mother’s womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be.”
God has created each of us with the potential to overcome adversity and to accomplish really good things. What matters most is the kind of people we are in our hearts, our inner self. We all need a goal and a sense of purpose in our lives. Our ultimate goal is heaven, where God dwells. Jesus is the way to that wonderful place where there will be no disabilities, but unending joy and fulfilment in the presence of God.