Little Charlie Gard is unaware of the international media attention surrounding him and his parents. Connie and Chris are fighting to get permission to take Charlie to the USA to undergo experimental treatment that might possibly save his life. Charlie was born on 4 August 2016 and suffers from a rare genetic condition known as mitochondrial DNA depletion. The excellent medical team at Great Ormond Street Hospital for Children have provided wonderful treatment and care for Charlie, but can do no more. They believe the time has come to withdraw treatment from Charlie and provide palliative care only. Connie and Chris have challenged this decision in the highest courts in Britain and Europe which, so far, have all supported the hospital’s view.
A parent’s love is a powerful thing. It nurtures, guides, protects, forgives. It is unconditional and can sometimes save your life. This love is seen in the passionate commitment of Connie and Chris to pursue any course of action that gives Charlie a chance to live. Connie has said, “He’s our son, he’s our flesh and blood. There is nothing to lose, he deserves a chance. If he is still fighting, we are still fighting. We’re not doing this for us. He’s our son. We want what’s best for him.”
In 2014, Ashya King’s parents provoked an international manhunt when they took their 5-year-old son from hospital in Southampton without the doctor’s consent. They wanted to take him to Prague to receive proton beam therapy which was unproven but, they believed, might save his life. Ashya was eventually treated in Prague and three years later he is well, happy and back in school. He has regular check-ups to monitor his health.
J. C Ryle, the first Anglican Bishop of Liverpool, wrote, “The nurse in the hospital may do her work properly and well, may give the sick patient his medicine at the right time, may feed him, care for him and attend to all his needs. But there is a difference between that nurse and a mother watching over a dying child. The one acts from a sense of duty; the other from affection and love. The one does her duty because she is paid for it; the other is what she is because of her heart.” The passionate love of a mother for her child reminds us of the even more amazing love of God who “so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life.”